ICUsteps was established in 2005 and became a registered charity in 2006. Run by former intensive care patients and relatives we aim to improve the care and support available to patients recovering from critical illness during their long recovery.
We have been active in a number of areas as part of our aim to improve patient support and highlight that recovery from critical illness does not end on discharge from hospital. As well as holding regular drop-in sessions and encouraging other groups to form, we've participated in the development of NICE guidelines for acutely ill patients in hospital (CG50) and critical illness rehabilitation (CG83).
We've presented to medical conferences up and down the country and have written a paper entitled 'Developing and setting up a patient and relatives intensive care support group' which was published in the January 2009 edition of Nursing in Critical Care.
In August 2007 we launched "Intensive Care - A guide for patients and relatives", an information booklet for patients and their relatives covering all stages of critical illness from admission through to rehabilitation which is available to all ICUs in the country at cost. Having seen first hand the benefits that come from being able to talk to other people who understand what you've been through, we're keen to help support groups form in other parts of the country.